Lupus Federal Working Group Roster

Updated March 11, 2015

U.S Department of Health and Human Services (DHHS) Members

Shashi G. Amur
Senior Staff Fellow, Genomics
Office of Clinical Pharmacology
Center for Drug Evaluation and Research
U.S. Food and Drug Administration
Silver Spring, MD 20993-0002

Jennifer Bishop-Crawford
Office of Women's Health
200 Independence Avenue, SW
Room 728E
Washington, DC 20201

Lisa Begg, Ph.D., R.N.
Director of Research Programs
Office of Research on Women's Health
Office of the Director
National Institutes of Health
Bethesda, MD 20892

Justine Buschman, M.S.
Health Science Analyst
Division of Skin and Rheumatic Diseases
National Institute of Arthritis and Musculoskeletal and Skin Diseases
National Institutes of Health
Bethesda, MD 20892

Robert Carter, M.D.
Deputy Director, National Institute of Arthritis and Musculoskeletal and Skin Diseases
National Institutes of Health
Bethesda, MD 20892-2350

Janine Clayton, M.D.
Acting Director, Office of Research on Women's Health
Office of the Director
National Institutes of Health
Bethesda, MD 20892-5484

Robyn DiLiello
Chief, Financial Management Branch
National Institute of Arthritis and Musculoskeletal and Skin Diseases
National Institutes of Health
Bethesda, MD 20892

Denise Geolot, Ph.D., R.N., F.A.A.N.
Director, Center for Quality
Health Resources Services Administration
Rockville, MD 20857

Ellen Goldmuntz, M.D., Ph.D.
Section Chief, Autoimmune and Primary Immunodeficiency Diseases Section
National Institute of Allergy and Infectious Diseases
National Institutes of Health
Bethesda, MD 20892-2520

Gilman Grave, M.D.
Chief, Endocrinology, Nutrition and Growth Branch
Eunice Kennedy Shriver National Institute of Child Health and Human Development
National Institutes of Health
Rockville, MD 20852

Suzanne Haynes, Ph.D.
Senior Science Advisor
The Office on Women's Health
Washington, DC 20201

Charles G. (Chad) Helmick, M.D.
Captain, U.S. Public Health Service
Medical Epidemiologist, Arthritis Program
Centers for Disease Control and Prevention
Atlanta, GA 30341

Michael C. Humble, Ph.D.
Program Administrator, Cellular, Organs and Systems Pathobiology Branch
Division of Extramural Research and Training
National Institute of Environmental Health Sciences
National Institutes of Health
Research Triangle Park, NC 27560

Chao Jiang, Ph.D.
National Institute of Arthritis and Musculoskeletal and Skin Diseases
National Institutes of Health
One Democracy Plaza
Bethesda, MD 20892

David Johnson
National Institute of Allergy and Infectious Diseases
National Institutes of Health
South Bend, IN 46637

Stephen Katz, M.D., Ph.D. (Chair)
Director, National Institute of Arthritis and Musculoskeletal and Skin Diseases
National Institutes of Health
Bethesda, MD 20892-2350

Ruth Kirby, R.N.
Clinical Trials Specialist, Atherothrombosis and Coronary Artery Disease
National Heart, Lung, and Blood Institute
National Institutes of Health
Bethesda, MD 20892

Kim Kurilla-Gray
Office of Research on Women's Health
Office of the Director
National Institutes of Health
Bethesda, MD 20892

Tamara Lewis-Johnson, M.B.A., M.P.H.
Women's Health Program Manager
Office of Special Populations and Research Training
National Institute of Allergy and Infectious Diseases
National Institutes of Health
Bethesda, MD 20892-7610

Marie Mancini, Ph.D.
Program Director, Systemic Autoimmune Disease Biology Program
Division of Skin and Rheumatic Diseases
National Institute of Arthritis and Musculoskeletal and Skin Diseases
National Institutes of Health One Democracy Plaza
Bethesda, MD 20892

Kathryn Marron, Ph.D.
Health Science Analyst
Division of Skin and Rheumatic Diseases
National Institute of Arthritis and Musculoskeletal and Skin Diseases
National Institutes of Health
Bethesda, MD 20892

Joan McGowan, Ph.D.
Director, Division of Musculoskeletal Diseases
National Institute of Arthritis and Musculoskeletal and Skin Diseases
National Institutes of Health
Bethesda, MD 20892-4872

Amanda Melillo, Ph.D.
Director, Salivary Biology and Immunology Program
Integrative Biology & Infectious Diseases Branch
National Institute of Dental and Cranofacial Research
National Institutes of Health
Bethesda, MD 20817

Melinda Nelson
Chief, Grants Management Branch
National Institute of Arthritis and Musculoskeletal and Skin Diseases
National Institutes of Health
One Democracy Plaza, Suite 838
Bethesda, MD 20892

Deborah Olster, Ph.D.
Acting Director, Office of Behavioral and Social Sciences Research
Office of the Director
National Institutes of Health
Bethesda, MD 20892-2027

John O'Shea, Ph.D.
Scientific Director
Office of the Scientific Director
Intramural Research Program
National Institute of Arthritis and Musculoskeletal and Skin Diseases
National Institutes of Health
Bethesda, MD 20892

Ameeta Parekh, Ph.D.
Director, Research and Development
Office of Women's Health
U.S. Food and Drug Administration
Silver Spring, MD 20993

Carol Pontzer, Ph.D.
Program Officer
National Center for Complementary and Integrative Health
National Institutes of Health
Bethesda, MD 20892

Susan V.L. Sanders, M.S.A.
Public Health Advisor
Office on Women's Health
Washington, D.C. 20201

Susana Serrate-Sztein, M.D.
Director, Division of Skin and Rheumatic Diseases
National Institute of Arthritis and Musculoskeletal and Skin Diseases
National Institutes of Health
One Democracy Plaza
Bethesda, MD 20892

Jeffrey Siegel, M.D.
Team Leader, Immunology and Infectious Diseases Team
Division of Biological Internal Medicine Products
Center for Drug Evaluation and Research
U.S. Food and Drug Administration
Rockville, MD 20852

Janine Smith, M.D.
Deputy Clinical Director
National Eye Institute
National Institutes of Health
Bethesda, MD 20892-1863

Lisa Spain
National Institute of Diabetes and Digestive and Kidney Diseases
National Institutes of Health
6707 Democracy Blvd
Bethesda, MD 20892

Retta Terry
Public Health Advisor
Office on Women's Health
Washington, DC 20201

Amanda Trayer
National Center for Complementary and Integrative Health
National Institutes of Health
Two Democracy Plaza
Bethesda, MD 20892

Ursula Utz, Ph.D.
Program Director
National Institute of Neurological Disorders and Stroke
National Institutes of Health
Bethesda, MD 20892

Professional Organizations Members and Patient Advocacy Organizations Members

Kathleen A. Arntsen
President & CEO
Lupus and Allied Diseases Association, Inc.
formerly Lupus Foundation of Mid & Northern NY, Inc.
Verona, New York 13478

Ms. Barrie Atkin
Rheuminations/Lupus Clinical Trials Consortium
New York, NY 10017

Jennifer Bell, Ph.D.
Research Director
Lupus Research Institute
New York, NY 10001

Kim Cantor
Vice President, Advocacy and Government Relations
Lupus Foundation of America, Inc.
Washington, DC 20036

Sara Chang
Senior Manager, Advocacy and Government Relations
Lupus Foundation of America, Inc.
Washington, DC 20036

Mary Crimmings
VP of Marketing, Communications and Advocacy
Lupus Foundation of America, Inc.
Washington, DC 20036

Peggy Crow, M.D.
Benjamin M. Rosen Chair in Immunology and Inflammation Research
Professor of Medicine
Director of Rheumatology Research and Autoimmunity and Inflammation Program
Hospital for Special Surgery
New York, NY 10021

Mary Ann Depowski
Manager of Operations
Rheuminations, Inc.
New York, NY 10019

Margaret G. Dowd
President
Lupus Research Institute
New York, NY 10001

Nicole Dueffert
Communications Director
Lupus Foundation of America, Inc.
Washington, DC 20036

Ken Farber
Executive Director
Alliance for Lupus Research
New York, NY 10036

Elesha Gayman Shahinllari
Senior Director of Government Relations and Public Policy
Lupus Foundation of America, Inc.
Washington, DC 20036

Diomaris Gonzalez
Coordinator of Research Administration
Alliance for Lupus Research
New York, NY 10036

Leslie Hanrahan
Vice President, Education and Research
Lupus Foundation of America, Inc.
Washington, DC 20036

John Hardin
Chief Scientific Officer
Arthritis Foundation, National Office
Atlanta, GA 30309

Brent Jaquet
Senior Vice President
Cavarocchi Ruscio Dennis Associates
Washington, DC 20024

Ann Palmer
President and CEO
Arthritis Foundation
Atlanta, GA 30309

Sandra C. Raymond
President and CEO
Lupus Foundation of America, Inc.
Washington, DC 20036

Debra Rose
Chief Operating Officer
Alliance for Lupus Research
New York, NY 10036

Csaba Siffel
Health Scientist
Arthritis Foundation, National Office
Atlanta, GA 30309

Katherine M. Snider
President and Editor-in-Chief
Rheuminations, Inc.
New York, NY 10017

Julie A. Venners
Vice President, Government Relations
Lupus Foundation of America, Inc.
Washington, DC 20036