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March 2, 2016
The National Institutes of Health (NIH) Osteoporosis and Related Bone Diseases ~ National Resource Center (NIH ORBD~NRC), a part of the U.S. Department of Health and Human Services, provides patients, health professionals, and the public with an important link to resources and information on metabolic bone diseases including osteoporosis, Paget’s disease of bone, and osteogenesis imperfecta. The center is dedicated to increasing the awareness, knowledge, and understanding of physicians, health professionals, patients, underserved and at-risk populations (such as Hispanic and Asian women, adolescents, and men), and the general public about the prevention, early detection, and treatment of osteoporosis and related bone diseases.
The NIH ORBD~NRC is supported by the National Institute of Arthritis and Musculoskeletal and Skin Diseases with contributions from:
The NIH ORBD~NRC provides a link between current resources and the individuals (e.g., health professionals, patients, and the public) who are trying to locate these resources. If you have questions about osteoporosis, Paget’s disease of bone, osteogenesis imperfecta, other bone diseases, or bone health promotion strategies, please contact us at:
If you need more information about available resources in your language or another language, please visit our website or contact the NIAMS Information Clearinghouse at NIAMSinfo@mail.nih.gov.
The center answers all telephone calls promptly during core working hours (Monday through Friday, 8:30 a.m. to 5:00 p.m., Eastern Time). After hours and on weekends and holidays, callers have the opportunity to leave their request and contact information in a voice mail box. Any information that you provide will be kept confidential.
Although the center cannot make physician referrals, we may refer you to organizations that do make referrals or provide you with information about the different types of physicians that treat your disorder.
The NIH ORBD~NRC develops new materials to fill important gaps in information, such as osteoporosis in men and information on rare bone diseases. Materials in Spanish and Asian languages and easy-to-read formats are also available.
Information on treatment options, coping strategies, and referral to appropriate organizations for additional information is also available.
NIH is renewing its commitment to providing meaningful access to its programs and activities for people with limited English proficiency (LEP). In accordance with Executive Order 13166, "Improving Access to Services for Persons with Limited English Proficiency," the information translated on the nih.gov site and on the NIAMS site is free of charge to the public.
If you need more information about available resources in your language or in another language, please contact us at NIAMSInfo@mail.nih.gov.