Meeting Reports 2002

NIH Muscular Dystrophy Research Task Force Agenda

May 15-16, 2002 (historical)

15 May 2002
7:00 PM Welcome and Introductions
7:30 PM Meeting Goals
8:00 PM Background on NIH Muscular Dystrophy Research and Related Initiatives
8:30 PM Review of Thursday Agenda
8:45 PM Discussion of Goals and Topics
9:00 PM Adjourn
16 May 2002
8:30 AM Review Agenda
8:45 AM Resources to further Muscular Dystrophy Research
What's needed
Making resources available to community
Researcher development
Promoting innovative approaches
10:15 AM Coordination of Research and Researchers
Promoting common dictionary, comparability and compatibility of data
Diagnostic criteria and clinical evaluation
11:45 AM Lunch
12:45 PM Promoting Clinical Studies and Trials: Support by NIH, health voluntary groups, and industry
Drug testing and development - a challenge for rare diseases
Behavioral and ethnicity issues
Ethical issues and barriers
2:30 PM Summarize
3:00 PM Adjourn