Meeting Reports 2003

NIH Muscular Dystrophy Research Task Force Roster

January 21-22, 2003

Jeffrey S. Chamberlain, Ph.D.
Professor
Department of Neurology
University of Washington School of Medicine
K243B HSB, Box 357720
1959 N.E. Pacific Street
Seattle, WA 98195-7720
TEL: 206-221-5363
FAX: 206-616-8272
E-mail: Jsc5@u.washington.edu

Patricia Furlong
President
Parent Project Muscular Dystrophy
1012 North University Blvd.
Middletown, OH 45042
TEL: 513-424-0696
FAX: 513-425-9907
E-mail: patfurlong@aol.com

Robert C. Griggs, M.D.
University of Rochester Medical Center
601 Elmwood Avenue, Box 673
Rochester, NY 14642-8673
TEL: 585-275-3707
FAX: 585-244-2529
E-mail: robert_griggs@urmc.rochester.edu

Sharon E. Hesterlee, Ph.D.
Director of Research Development
Muscular Dystrophy Association
3300 East Sunrise Drive
Tucson, AZ 85718
TEL: 520-529-5433
FAX: 520-529-5454
E-mail: shesterlee@mdausa.org

R. Rodney Howell, M.D.
University of Miami
Department of Pediatrics
PO Box 016820 - D 820
Miami, FL 33101
TEL: 305-243-3993
FAX: 305-243-3990
E-mail: rhowell@peds.med.miami.edu

Louis M. Kunkel, Ph.D.
Professor of Pediatrics and Genetics
Harvard Medical School
Investigator, Howard Hughes Medical Institute
HHMI/Genetics/Enders 5
320 Longwood Avenue
Boston, MA 02115
TEL: 617-355-6729
FAX: 617-355-7588
E-mail: kunkel@rascal.med.harvard.edu

Katherine Mathews, M.D.
University of Iowa Hospitals and Clinics
Departments of Pediatrics and Neurology
2503 JCP
Iowa City, IA 52246
TEL: 319-356-2436
FAX: 319-356-4855
E-mail: katherine-mathews@uiowa.edu

Craig M. McDonald, M.D.
University of California School of Medicine
Department of Physical Medicine
and Rehabilitation
1 Shields Avenue, TB 191
Davis, CA 95616
TEL: 530-752-2903
FAX: 530-752-3468
E-mail: cmmcdonald@ucdavis.edu

Elizabeth McNally, M.D., Ph.D.
Assistant Professor
University of Chicago
Department of Medicine, Section on Cardiology
Department of Human Genetics
Committees on Genetics and
Developmental Biology, Room A606
5841 S. Maryland Avenue, MC 6088
Chicago, IL 60637
TEL: 773-702-2672
FAX: 773-702-2681
E-mail: emcnally@medicine.bsd.uchicago.edu

Jerry Mendell, M.D.
Ohio State University
Department of Neurology
1654 Upham Drive, Room 445 Means Hall
Columbus, OH 43210
TEL: 614-293-4962
FAX: 614-293-9029
E-mail:mendell.1@osu.edu

Daniel Paul Perez
President
FSH Society
3 Westwood Road
Lexington, MA 02420
TEL: 781-860-0501
FAX: 781-863-0788
daniel.perez@fshsociety.org

Charles A. Thornton, M.D.
University of Rochester Medical Center
Department of Neurology, Room 5-4203
601 Elmwood Avenue, Box 673
Rochester, NY 14642
TEL: 585-275-2543 (2542 for secretary) or 1209 LAB: 585-275-7108
FAX: 585-273-1255
E-mail: charles_thornton@urmc.rochester.edu

Federal Attendees

Robert Baughman, Ph.D.
Associate Director, Office of Technology Development
National Institute of Neurological
Disorders and Stroke, NIH
Neuroscience Center, Room 2137
6001 Executive Boulevard
Bethesda, MD 20892-9527
TEL: 301-496-1779
FAX: 301-401-1501
E-mail: baughmar@ninds.nih.gov

Daofen Chen, Ph.D.*
Program Director
Channels/Synapses/Circuits and
Muscular Dystrophy Research
National Institute of Neurological
Disorders and Stroke, NIH
Neuroscience Center, Room 2131
6001 Executive Boulevard
Bethesda, MD 20892-9523
TEL: (301) 496-1917
FAX: (301) 402-1501
Email: daofen_chen@nih.gov

Stephen C. Groft, Pharm.D.
Director
Office of Rare Diseases Research, NIH
6100 Executive Blvd, Room 3B-01
Bethesda, MD 20892-7518
TEL: 301-435-6041
FAX: 301-480-9655
E-mail: grofts@mail.nih.gov

Katrina Gwinn-Hardy, M.D.*
Program Director
Genetics of Neurological Disorders
National Institute of Neurological
Disorders and Stroke, NIH
Neuroscience Center, Room 2142
6001 Executive Blvd.
Rockville, MD 20892-9527
TEL: 301-496-5745
FAX: 301-402-1501
E-mail: kg127@nih.gov

James W. Hanson, M.D.*
Director
Center for Developmental Biology
and Perinatal Medicine
National Institute of Child Health
and Human Development, NIH
Room 4B09, MSC 7510
6100 Executive Boulevard
Bethesda, MD 20892-7510
TEL: 301-496-1383
FAX: 301-496-3791
E-mail: jh350g@nih.gov

Anita M. Linde
Senior Program Analyst, Office of the Director
National Institute of Arthritis and
Musculoskeletal and Skin Diseases, NIH
Building 31, Room 4C32
Bethesda, MD 20892
TEL: 301-496-0803
FAX: 301-402-3607
E-mail: lindea@mail.nih.gov

Richard W. Lymn, Ph.D.*
Director, Muscle Biology Branch
National Institute of Arthritis and
Musculoskeletal and Skin Diseases, NIH
One Democracy Plaza
6701 Democracy Blvd., Suite 800
Bethesda, MD 20892-4872
TEL: 301-594-5128
FAX: 301-480-4543
E-mail: lymnr@ep.niams.nih.gov

John J. McCormick, M.D.
Deputy Director
Office of Orphan Product Development
Food and Drug Administration, DHHS
Parklawn Building, Room 6A-55
5600 Fishers Lane
Rockville, MD 20857
TEL: 301-827-0991
FAX: 301-827-0017
E-mail: jmccormi@oc.fda.gov

Audrey S. Penn, M.D.
Acting Director
National Institute of Neurological
Disorders and Stroke, NIH
Room 8A52, Building 31
Bethesda, MD 20892
TEL: 301-496-3167
FAX: 301-496-0296
E-mail: penna@ninds.nih.gov

Giovanna M. Spinella, M.D.*
Director of Extramural Research
for Rare Diseases
Office of Rare Diseases Research, NIH
6100 Executive Blvd., Room 3B-01
Bethesda, MD 20892-7518
TEL: 301-402-4336
FAX: 301-480-9655
E-mail: spinellg@mail.nih.gov


* NIH Representatives